In last week’s article, “The Frustration of Morgellons Disease,” the debilitating symptoms and frustrations of this illness were noted. Many patients are so desperate for answers that they may consider any possible factor, connection or causal source. Regardless of how remote or inaccurate the cause may seem to others, these ideas are very real concerns for some patients. Some physicians have also been prone to theorize that the roots of Morgellons may stem from an environmental cause.
THE CHARLES E. HOLMAN MORGELLONS DISEASE FOUNDATION
This Foundation is the “singularly recognized authority on Morgellons and stands alone in funding scientific research of this condition.” Their website is a wonderful resource of current, scientific, and evidence-based information. Cindy Casey-Holman, R.N., is the Director of the Foundation and also a Morgellons patient. She has courageously shared her own story and journey involving this life-changing illness. Read her story HERE.
WHAT MORGELLONS IS and WHAT MORGELLONS ISN’T
As noted in the article last week, Morgellons can involve more than the characteristic skin condition (crawling, itching, stinging, and the distinguishing fibers embedded in the skin).
In conjunction with the dermatologic symptoms, additional multi-system involvement can include:
(1) Visual changes
(2) Cognitive changes (“brain fog”)
(3) Gastrointestinal disturbances
(4) Muscle and joint pain
(5) Neurological impairment
In 2013, published findings confirmed a spirochete bacterium (Borrelia) in skin specimens of patients with Morgellons. Although there is no cure or specific treatment, physicians who specialize in the diagnosis and treatment of Lyme Disease are particularly knowledgeable about this spirochetal bacterium and have the necessary experience in dealing with infections from this organism.
Morgellons is a physiological illness. It is not a mental illness or “delusional parasitosis” as some have suggested. For this reason, it is important to seek advice and medical attention from a health care provider who is compassionate regarding all aspects of this condition.
Currently, there are no specific tests that will definitively diagnose Morgellons. A clinical diagnosis is made based on a physical examination, evaluation of the patient’s symptoms, and viewing the fibers in the skin using a microscope with 60-100x magnification. (With these microscopes, the characteristic black or colored fibers can be seen embedded in skin that is completely intact or in skin with open lesions.)
Morgellons does not discriminate concerning gender, age or ethnicity. Animals have even been reported with symptoms.
RESOURCES AND ADDITIONAL INFORMATION
The Charles E. Holman Morgellons Disease Foundation’s website has a plethora of useful information. An excellent brochure is available for downloading, printing and sharing with family, friends and health care providers to help inform and educate about this condition. Use this LINK to access the brochure.
“The heart of the discerning acquires knowledge, for the ears of the wise seek it out.” (Proverbs 18:15 / NIV)
The Foundation offers knowledge and wisdom for those who are willing to seek it. They offer hope to help alleviate fear.
If you are unsure where to begin, click HERE.
Who do you know that may benefit from this information?
Tears fill my eyes, my hands quiver,
my life is not a life anymore.
I suffer with morgellons disease.
What I have been through for 4 yrs is enough to break the core of the strongest person.
I live in hell on earth.
My journal.. http://www.caringbridge.org/visit/slippingaway
I unfortunately know what that feels like. I feel like i have been robbed of my life.
Thank you for sharing about your experiences with Morgellons. We plan to continue to publish material on Morgellons when new information is made available about this disease. We have also added you to our prayer list and will be lifting you up in prayer. Thanks so much for sharing about your experiences. We know it’s not an easy condition to deal with. God bless.
Marcie and Ashley, I am so sorry for the suffering that you are enduring through all of this. You are in my prayers. If you click on the Foundation’s website, look at the banner at the top that has “Make a Difference” and then click on “Connect with Others.” There is a list of other people with Morgellons along with their stories of what they are going through. Some have email addresses or websites. You may be able to connect with some of them. Sometimes knowing that you’re not alone can be comforting. Whether God brings you out of this or sees you through it, He WILL be with you. I am praying for you.